Showing posts with label noah. Show all posts
Showing posts with label noah. Show all posts
jillianduch
Little by little, laylagrace.org has become my favorite blog. Don't go there unless you have at least 30 minutes to read from the end to at least the middle of the story of a Christian family, an adorable little girl and a faith in God that (apparently) stood the test of cancer and death.



Little Layla Grace lost her struggle with Neuroblastoma yesterday. Her mother (and sometimes her father) told their story and hers through Twitter, Flickr and the blog. A little girl in a pink knit cap sucking on a Popsicle. The pain of sending your older two children - who aren't all that old at all - to their grandma's so you and your husband could watch your littlest die. The realization that what you had thought would be a few months left would only be a few weeks. And then the realization that death would not come peacefully.

It's all there. On the Internet. Because even when you think all you have is faith, another most human urge is to tell your story. To be understood. To make others understand.

A few days ago, Layla Grace's dad wrote:

We’re not made of steel, we’re not half as strong as many have made us out to be. We simply hope and believe that God has the power to change anything, even this. We cry and pray, and yell and pray, and shake our fist at God, it’s ok though… he can take it.

His post had 1,370 comments. Then, his wife wrote about refusing to allow her daughter to hear here cry as her little body lay dying:
I have to be strong for her. I have to be the one to tell her that it’s going to be ok. That I’m so incredibly proud of her strength and grace. That I will take her short amazing little life and tell the story over and over again. That she WILL continue to do God’s work and she WILL make a difference in the lives of children with cancer.

Amen. (The amen was mine, not hers.)

And then, at 12:43 p.m. yesterday, there was a Tweet:

Layla went to play with the angels early this morning. Rest in peace precious Layla. 11/26/2007 - 3/9/2010

She has 47,297 followers. Girl never made it to kindergarten, but tens of thousands of people care about the messages her mother doles out 140 characters (or less) at a time. That's more than enough space to describe the incomprehensible:

Claire told the dog 2 stop barking b/c she was going 2 wake up Layla. Tears started flowing. (posted about 8:40 a.m. today)
jillianduch
How do you tell the world your two-year-old is probably dying in 140 characters or less? Layla Grace's mom didn't - she spread it out over several Tweets last Friday at 
www.twitter.com/laylagrace





Layla Grace has Neuroblastoma, an aggressive form of childhood cancer (the same form of cancer Noah had). Last week, doctors told her family that despite the treatments, they had found new tumors. They started oral chemotherapy, which slows the tumor's growth rate in about half of these situations. A doctor also told them they should prepare like they have two months left for her.


This week's Crafters for a Cure focuses on Layla Grace's mom's dear friend, whose Etsy shop includes a necklace, bracelet and T-shirt with sales going toward Layla Grace's medical bills. Here's a little bit more about the shop, and Layla Grace, in Kinsey's own words.

What I create:
I create a collection of jewelry designed to bring awareness to Neuroblastoma, a very common yet aggressive form of childhood cancer. A friend of mine's daughter, Layla Grace Marsh, was diagnosed last year, and she has been in the fight of her life ever since. Each piece in my collection carries her name, and is handmade with the utmost care and for the cause.



My favorite piece in my Etsy shop is:
By far, my favorite piece is the hand stamped necklace. When making this piece, I tried to think of a single word that would represent Layla. Not only did I come up with one, but I thought of two. The first that came to mind was"courage". She is the most courageous person I have ever known, and her spirit is so strong that she inspires me. The second word is "faith". No one can say they have endured cancer without having faith. These words are one the necklace, along with an amethyst stone to represent cancer, and the awareness ribbon in gold to represent Neuroblastoma awareness.

Why I hate cancer:
I hate cancer because it is a vicious monster that knows no boundaries. It affects all people, young and old, with no regard to the pain it causes. I hate cancer because it will take of my oldest friend's 2 year old baby, despite how hard she has been fighting it.


The cancer initiatives I support:
I support as many cancer initiatives as I can. I run the Susan G. Komen Race for the Cure, as well as support the Children's Neuroblastoma Cancer Foundation. This year, I plan to participate in as many fund raising activities as I can to support Texas Childrens Hospital, who has treated Layla since her diagnoses.

What more people should realize about cancer is:
How awful it is. So many people have no idea how bad it is. It is painful to see what it does to those affected. To see a person transform into a shell of their former self. To watch a child lose her hair, lose astonishing amounts of weight, throw up, get poked and prodded, have surgery after surgery, all to lose the battle-it has forever affected me. I hug my child more than ever, just because he is healthy and here.

My favorite cancer-awareness slogan: "Cancer Sucks"

The biggest blessing in my life is:
Having a wonderful, healthy son, whom I get to hold everyday, and getting the privilege to learn such a great deal about life from a 2 year old little girl with a heart of gold.

Find out more about Layla Grace at:



P.S. Be sure to check out the Chailatteplease giveaway. Tell us who gives you great support. :)
jillianduch
I'm sure anyone interested can read his mom's announcement on his Care Page themselves, but to repost:

After a long battle with Stage IV Neruorblastoma cancer, Monday morning at 8:02 AM, Noah Biorkman passed away at his home in South Lyon, Michigan.

Scott and I, along with our families, would like to thank everyone for the continued support over the past few years during Noah’s illness. As most of you know, Noah has received more than one million Christmas cards over the past few weeks. The outpouring of love and compassion has been remarkable and we are extremely grateful. We are now asking for everyone please respect our privacy during this very difficult time. The funeral services will be for family only. We are asking that instead of sending cards and flowers to Scott and me; please make a donation in Noah’s name to either of the organizations below. With your donation, Noah’s legacy will live on for many years to come, if not forever.

Thank you so much for your support and love.

Sincerely,
The Biorkman Family

Please send donations to the following:

Department of Pediatrics and Oncology
University of Michigan
1500 East Medical Center Drive
D4202MPB
Ann Arbor, Michigan 48109-5718
Checks payable to: The University of Michigan – Noah’s Pediatric Oncology Fund

OR

Make-A-Wish Foundation of Michigan
230 Huron View Blvd.
Ann Arbor, Michigan 48103
Checks payable to: Make-A-Wish Foundation of Michigan – Memo: Noah Biorkman

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